1 | | | | | |
2 | 09/21/22 | | | Cross-Cutting Research Committee (CCRC) |
| | | |
3 | | | tronis@childrensnational.org | | |
4 | | | | CCRC Vice Chair: Peter Chira |
| pchira@health.ucsd.edu | | |
5 | 09/21/22 | | | Implementation Science Workgroup |
| | 2019 | |
6 | | | c.yildir@texaschildrens.org | | |
7 | | | rpooni@stanford.edu | | |
8 | | | ingrid.goh@sickkids.ca | | |
9 | 09/21/22 | | | April 2015 | |
10 | | | andrea.knight@sickkids.ca | | |
11 | | | trubinst@montefiore.org | | |
12 | | | natoshia@msu.edu | | |
13 | 09/21/22 | | | Reproductive Health Workgroup |
| | April/May 2019 | |
14 | | | cuoghi.edens@gmail.com | | |
15 | | | klynnehays@gmail.com | | |
16 | 09/21/22 | | | | |
17 | | | Joyce.Chang@childrens.harvard.edu | | |
18 | | | erica.lawson@ucsf.edu | | |
19 | 09/21/22 | | | Clinical Informatics Workgroup |
| | September 2020 | |
20 | | | rpooni@stanford.edu | | |
21 | | | tronis@childrensnational.org | | |
22 | | | Alysha.Taxter@nationwidechildrens.org | | |
23 | | | tzlee@stanford.edu | | |
24 | 09/21/22 | | | 2021 | |
25 | | | vidya.sivaraman@nationwidechildrens.org | | |
26 | | | meravheshin@gmail.com | | |
27 | | | RUTSTEINB@chop.edu | | |
28 | 09/21/22 | | | Health Equity Research (HER) Workgroup |
| | 2021 | |
29 | | | jennifer.woo@nih.gov | | |
30 | | | jamesjar@buffalo.edu | | |
31 | 09/23/22 | | | Early Investigator (EI) Committee |
| | | |
32 | | | kaveh.ardalan@duke.edu | | |
33 | | | | EI Vice Chair: Sabrina Gmuca |
| gmucas@email.chop.edu | | |
34 | 09/23/22 | | | | |
35 | | | | Fellows Co-Chair: Sara Patrizi |
| spatrizi@stanford.edu | | |
36 | | | | Fellows Co-Chair: Laura Nedorezov@cchmc.org |
| laura.nedorezov@cchmc.org | | |
37 | 09/23/22 | | | Medical Education Research |
| | | |
38 | | | megan.curran@childrenscolorado.org | | |
39 | | | kristen.hayward@seattlechildrens.org | | |
40 | | | mehtaj@email.chop.edu | | |
41 | 09/23/22 | | | Juvenile Dermatomyositis (JDM) Committee |
| | | |
42 | | | susan.kim@ucsf.edu | | |
43 | | | | JDM Vice Chair: Stacey Tarvin |
| starvin@iu.edu | | |
44 | 09/23/22 | | | Biologic Therapy in Juvenile Dermatomyositis Workgroup |
| | | |
45 | | | spencercharlesh1@gmail.com | | |
46 | | | starvin@iu.edu | | |
47 | | | | | |
48 | | | sherman.matthew.a@gmail.com | | (not noted on fellow liaison list) |
49 | 09/23/22 | | | Calcinosis in JDM Workgroup |
| | | |
50 | | | dwahezi@montefiore.org | | |
51 | | | | Belina Yi (Fellow Liaison) |
| belyi@chla.usc.edu | | |
52 | 09/23/22 | | | JDM/SLE Dermatology Workgroup |
| | | |
53 | | | susan.kim@ucsf.edu | | |
54 | | | | Heather Brandling Bennett |
| habb@seattlechildrens.org | | |
55 | 09/23/22 | | | Quality of Care in JDM Workgroup |
| | | |
56 | | | htory@connecticutchildrens.org | | |
57 | 09/23/22 | | | | |
58 | | | dwahezi@montefiore.org | | |
59 | 09/23/22 | | | Rehabilitation & Exercise in JDM Workgroup |
| | 2021 | |
60 | | | khoughton@cw.bc.ca | | |
61 | | | helga.sanner@medisin.uio.no | | |
62 | | | krisum@ous-hf.no | | |
63 | | | Sue.Maillard@gosh.nhs.uk | | |
64 | 09/23/22 | | | Telemedicine and JDM Workgroup |
| | July 2021 | |
65 | | | peter.blier@gmail.com | | |
66 | | | starvin@iu.edu | | |
67 | | | ingrid.goh@sickkids.ca | | |
68 | 09/23/22 | | | Translational Medicine in JDM (TM for JM) Workgroup |
| | 2021 | |
69 | | | jessica.neely@ucsf.edu | | |
70 | | | turnierj@med.umich.edu | | |
71 | 09/23/22 | | | Juvenile Idiopathic Arthritis (JIA) Committee |
| | | |
72 | | | marinka.twilt@albertahealthservices.ca | | |
73 | | | | JIA Vice Chair: Daniel Horton |
| daniel.horton@rutgers.edu | | |
74 | 09/23/22 | | | Inactive Disease Workgroup |
| | | |
75 | | | marinka.twilt@ahs.ca | | |
76 | | | Olha.Halyabar@childrens.harvard.edu | | |
77 | 09/23/22 | | | | |
78 | | | gottlieb@northwell.edu | | |
79 | 09/23/22 | | | Juvenile Spondyloarthritis (JSpA) Workgroup |
| | | |
80 | | | erin.treemarcki@hsc.utah.edu | | |
81 | | | msoliver@iu.edu | | |
82 | 09/23/22 | | | Systemic Juvenile Idiopathic Arthritis (sJIA) Workgroup |
| | | |
83 | | | onelk@hss.edu | | |
84 | | | susan.shenoi@seattlechildrens.org | | |
85 | | | rebecca.trachtman@mssm.edu | | |
86 | 09/23/22 | | | TMJ Interest Group Workgroup |
| | | |
87 | | | lermanm@chop.edu | | |
88 | | | PanN@HSS.EDU | | |
89 | 09/23/22 | | | CARRA Ultrasound Workgroup |
| | | |
90 | | | dderanieri@luriechildrens.org | | |
91 | | | edward.oberle@nationwidechildrens.org | | |
92 | | | jroth@cheo.on.ca | | |
93 | | | tracy.ting@cchmc.org | | |
94 | | | patriciavegaf@gmail.com | | |
95 | | | clara.lin@childrenscolorado.org | | |
96 | | | heather.benham@tsrh.org | | |
97 | 09/23/22 | | | | |
98 | | | amcooper@cmh.edu | | |
99 | | | lermanm@email.chop.edu | | |
100 | 09/23/22 | | | | |
101 | | | | Pain Chair: Susmita Kashikar-Zuck |
| susmita.kashikar-zuck@cchmc.org | | |
102 | | | | Pain Vice Chair: Jennifer Weiss |
| jennifer.weiss@hmhn.org | | |
103 | 08/29/22 | | | Fibromyalgia Intervention Training (FIT) Teens Multi-Center RCT Workgroup |
| | | |
104 | | | susmita.kashikar-zuck@cchmc.org | | (members include M. Connelly, C. Hoffart, S. Ardoin, A. Goldstein-Leever) |
105 | 09/23/22 | | | Juvenile Fibromyalgia Diagnostic Criteria Workgroup |
| | | |
106 | | | jennifer.weiss@hmhn.org | | Patient/parent advisory panel includes Ela Chintagunta, Tiffany Crawford and Corinne Pinter. |
107 | | | susmita.kashikar-zuck@cchmc.org | | |
108 | 09/23/22 | | | Prevalence of Widespread Pain in pSLE & JDM |
| | | |
109 | | | spatrizi@stanford.edu | | |
110 | | | jennifer.weiss@hmhn.org | | |
111 | | | susmita.kashikar-zuck@cchmc.org | | |
112 | 09/23/22 | | | Development of Non-nociceptive Pain in JIA |
| | 2022 | New workgroup noted on Sept 2022 report |
113 | | | mconnelly1@cmh.edu | | |
114 | | | jennifer.weiss@hmhn.org | | |
115 | | | susmita.kashikar-zuck@cchmc.org | | |
116 | | | Jaymin.upadhyay@childrens.harvard.edu | | |
117 | | | mara.becker@duke.edu | | |
118 | 09/23/22 | | | RCN (Research Coordinator Network) Committee |
| | | |
119 | | | joanne.drew@nationwidechildrens.org | | |
120 | | | | RCN Vice Chair: Logan Lentini |
| llentini@ufl.edu | | |
121 | 09/23/22 | | | SLE (Systemic Lupus Erythematosus) Committee |
| | | |
122 | | | andrea.knight@sickkids.ca | | |
123 | | | | SLE Vice Chair: Laura Lewandowski |
| laura.lewandowski@nih.gov | | |
124 | 09/23/22 | | | Antiphospholipid Syndrome Workgroup |
| | | |
125 | | | dmccurdy@mednet.ucla.edu | | |
126 | | | elizabethsloan@gmail.com | | |
127 | | | madisonj@med.umich.edu | | Since 8/22 |
128 | 09/23/22 | | | JDM/SLE Dermatology Workgroup |
| | | Duplicate from JDM Workgroup |
129 | | | | Heather Brandling-Bennett |
| habb@seattlechildrens.org | | |
130 | | | Susan.kim@ucsf.edu | | |
131 | 09/23/22 | | | CLUTCH -Childhood-onset LUpus Translational research Collaboration Hub Workgroup |
| | 2020 | Formerly Lupus Genetics Workgroup. Name change 9/22 |
132 | | | linda.hiraki@sickkids.ca | | |
133 | | | susan.thompson@cchmc.org | | |
134 | | | laura.lewandowski@nih.gov | | |
135 | 09/23/22 | | | | |
136 | | | rebecca.sadun@duke.edu | | |
137 | | | wenderse@hotmail.com | | |
138 | 09/23/22 | | | Neuropsychiatric Lupus Workgroup |
| | March 2022 | |
139 | | | Ekemini.Ogbu@cchmc.org | | |
140 | | | martrodr@iu.edu | | |
141 | | | andrea.knight@sickkids.ca | | |
142 | 09/23/22 | | | | |
143 | | | | Small Centers Chair: Sheetal Vora |
| sheetal.vora@atriumhealth.org | | |
144 | | | | Small Centers Vice Chair: Kathryn Cook |
| kphillippi-cook@akronchildrens.org | | |
145 | 09/23/22 | | | Small Centers Wellness Initiative |
| | | new as of 9/22 |
146 | | | kphillippi-cook@akronchildrens.org | | |
147 | | | sheetal.vora@atriumhealth.org | | |
148 | 09/23/22 | | | | |
149 | | | eveline.wu@unc.edu | | |
150 | | | | RD Vice Chair: Jessica Bloom |
| jessica.bloom@childrenscolorado.org | | |
151 | 09/23/22 | | | ANCA Associated Vasculitis (AAV) Workgroup |
| | | |
152 | | | dcabral@cw.bc.ca | | |
153 | | | lww@uchicago.edu | | |
154 | | | vidya.sivaraman@nationwidechildrens.org | | |
155 | 09/23/22 | | | Inflammatory Brain Disease Workgroup |
| | | |
156 | | | emuscal@bcm.edu | | |
157 | | | heather.vanmater@duke.edu | | |
158 | | | susanne.benseler@ahs.ca | | |
159 | 09/23/22 | | | Childhood Sjogren Disease Workgroup |
| | | |
160 | | | scott-lieberman@uiowa.edu | | |
161 | | | Sara.Stern@hsc.utah.edu | | |
162 | | | Basiaga.Matthew@mayo.edu | | |
163 | 09/23/22 | | | CNO/CRMO (Chronic Non-bacterial Osteymyelitis/Chronic Recurrent Multifocal Ostemyelitis) Workgroup |
| | | |
164 | | | fatma.dedeoglu@childrens.harvard.edu | | |
165 | | | polly-ferguson@uiowa.edu | | |
166 | | | msoliver@iu.edu | | |
167 | | | eveline.wu@unc.edu | | |
168 | | | yongdong.zhao@seattlechildrens.org | | |
169 | 09/23/22 | | | Pediatric Scleroderma Workgroup |
| | | |
170 | | | suzanne.li@hmhn.org | | |
171 | | | kathryn.torok@chp.edu | | |
172 | 09/23/22 | | | Refractory Kawasaki Disease (KD) Workgroup |
| | | |
173 | | | cagri.yildirimtoruner@bcm.edu | | |
174 | | | bianca.lang@dal.ca | | |
175 | 09/23/22 | | | PFAPA (Periodic Fever, Apthous Stomatitis, Pharyngitis, and Adenitis) and Autoinflammatory Diseases Workgroup |
| | | |
176 | | | sivia.lapidus@hmhn.org | | |
177 | 09/23/22 | | | Autoinflammatory Program Development |
| | | |
178 | | | mgutie10@jhmi.edu | | |
179 | | | Grant.Schulert@cchmc.org | | |
180 | 09/23/22 | | | | |
181 | | | fatma.dedeoglu@childrens.harvard.edu | | |
182 | | | autoinflammatory@gmail.com | | |
183 | 09/23/22 | | | | |
184 | | | nmsaad@med.umich.edu | | |
185 | | | pad9003@med.cornell.edu | | |
186 | 09/23/22 | | | Translational Research & Technology Research Committee (TRTC) Committee |
| | | |
187 | | | | TRTC Chair: Lauren Henderson |
| lauren.henderson@childrens.harvard.edu | | |
188 | | | | TRTC Vice Chair: Grant Schulert |
| grant.schulert@cchmc.org | | |
189 | 09/23/22 | | | Patient/Family Advisory Council Workgroup |
| | | |
190 | | | melaniejaprojects@gmail.com | | |
191 | | | | Lauren Henderson - Advisor |
| lauren.henderson@childrens.harvard.edu | | |
192 | 09/23/22 | | | | |
193 | | | turnierj@med.umich.edu | | |
194 | | | grant.schulert@cchmc.org | | |
195 | 09/23/22 | | | | |
196 | | | anna.e.patrick@vumc.org | | |
197 | | | cannas@chop.edu | | |
198 | 09/23/22 | | | | |
199 | | | susan.thompson@cchmc.org | | |
200 | | | lauren.henderson@childrens.harvard.edu | | |
201 | | | melaniejaprojects@gmail.com | | |
202 | 09/23/22 | | | 2021 | |
203 | | | catherine.lavallee@childrens.harvard.edu | | |
204 | | | | Lauren Henderson-- Advisor |
| lauren.henderson@childrens.harvard.edu | | |
205 | | | | 2022 | |
206 | | | grant.schulert@cchmc.org | | |
207 | | | | | |
208 | | | | | |
209 | | | | | |
210 | | | | | |
211 | | | | | |
212 | | | | | |
213 | | | | | |
214 | | | | | |
215 | | | | | |
216 | | | | | |
217 | | | | | |
218 | | | | | |
219 | | | | | |
220 | | | | | |
221 | | | | | |
222 | | | | | |
223 | | | | | |
224 | | | | | |
225 | | | | | |
226 | | | | | |
227 | | | | | |
228 | | | | | |
229 | | | | | |
230 | | | | | |
231 | | | | | |
232 | | | | | |
233 | | | | | |
234 | | | | | |
235 | | | | | |
236 | | | | | |
237 | | | | | |
238 | | |  | TRTC Past Workgroups/Projects |
| | | |
248 | | | | | |
249 | | | | | |
250 | | |  | Past JIA Workgroup Leaders |
| | | |
252 | | | | | |
253 | | | | | |
254 | | |  | Pain Past Workgroups/Projects |
| | | |
255 | | |  | Chronic Widespread Pain in JIA Workgroup - Completed and published |
| | | |
260 | | |  | iCanCope App Workgroup - Completed and published |
| | | |
263 | | |  | Punch Biopsy for Juvenile Primary Fibromyalgia Workgroup - Completed and published |
| | | |
265 | | |  | Juvenile Fibromyalgia in Patients with Juvenile Idiopathic Arthritis |
| | | |
267 | | |  | Past Pain Workgroup Leaders |
| | | |
269 | | | | | |
270 | | |  | JDM Past Workgroups/Projects |
| | | |
275 | | | | | |
276 | | | | | |
277 | | |  | CCRC Past Workgroup Leaders |
| | | |
279 | | | | | |
280 | | | | | |
281 | | | | | |
282 | | | | Development of a Pain Decision Support Aid for JIA Workgroup |
| | | Not on september 2022 report, forper pain group |
283 | | | ktoupin@cheo.on.ca | | |
284 | | | | Gut Microbiota in Juvenile Fibromyalgia |
| | | former pain group |
285 | | | jennifer.weiss@hackensackmeridian.org | | |
286 | | | mstoll@peds.uab.edu | | |
287 | | | | | |
288 | | | | | |
289 | | | | Pain modulation, sleep and inflammation in teens with JFM Workgroup |
| | | former pain group |
290 | | | Christopher.King@cchmc.org | | |
291 | | | | | |
292 | | | | | |
293 | | | | | |
294 | | |  | PFAPA WORKGROUP |
| | | |
295 | | | | | From PFAPA group/RD, not on 9/22 report |
296 | | | mariana_marques@hotmail.com | | |
297 | | | nmsaad@med.umich.edu | | |
298 | | | | | |
299 | | | | | |
300 | | | | | From PFAPA group/RD, not on 9/22 report |
301 | | | cagri.yildirimtoruner@bcm.edu | | |
302 | | | | Autoinflammatory Registry |
| | | From PFAPA group/RD, not on 9/22 report |
303 | | | Marinka.Twilt@albertahealthservices.ca | | |
304 | | | | | |
305 | 06/06/22 | | | Transitional/PFAPA Genetic Consrtium |
| | | From PFAPA group/RD, not on 9/22 report |
306 | | | kalpana.manthiram@nih.gov | | |
307 | | | | | |
308 | | | | | |
309 | | | ayalcindag@lifespan.org | | former KD workgroup leader, not on 9/22 report |
310 | | | | | |
311 | | | | | |
312 | | | | Laura Lewandowski - Chair |
| laura.lewandowski@nih.gov | | former leader for Sample Arching workgroup (TRTC) |
313 | | | | | |
314 | | | | Biosample Collection/Biorepository |
| | | removed from report 9/22, former trtc group |
315 | | | lauren.henderson@childrens.harvard.edu | | |
316 | | | | | |
317 | | | | | |
318 | | | | | removed from report 9/22, former trtc group |
319 | | | divercory@gmail.com | | |
320 | | | mgutie10@jhmi.edu | | |
321 | | | peter.nigrovic@childrens.harvard.edu | | |
322 | | | | | |